I participated in an Influencer Activation on behalf of Influence Central for Scleroderma Awareness. I received a promotional item to thank me for my participation.
Did you know June is Scleroderma Awareness Month? Do you even know what Scleroderma is? Many people don’t. In fact, if you or someone you know doesn’t have Scleroderma, you probably don’t know anything about it.
I first heard the word Scleroderma in 1985-86 when one of my best friends was diagnosed with it. Because of that, I’ve been familiar with the disease for awhile. Yet over the last thirty years, with the exception of my friend, I rarely hear the word.
This is all the more reason I want to help bring awareness to this disease. Since June is Scleroderma Awareness month you can join me in making a pledge to spread awareness of this oftentimes unheard of disease.
What is Scleroderma?
Scleroderma is an autoimmune disease and at this time there is no known cause and no cure. It is so important that there is more research, but because so few people are aware of the disease, the resources just aren’t there that researchers so desperately need.
Scleroderma is so rare; it affects only 1 in 906 people. Women are hit the hardest, with 80% of all patients being female.
Check out this infographic for even more info on Scleroderma:
My friend has the Localized type of Scleroderma, which affects only her skin.
Scleroderma affects thousands of people, but as I mentioned earlier, there are billions who know nothing about this disease. As a mom, I do everything I can to stay healthy because I want to be around a long time… to watch my grandchildren and great-grandchildren some day.
Just because I don’t have Scleroderma now, doesn’t mean I couldn’t develop it some day. Or maybe my son will one day fall in love and marry a girl who will have it. I don’t want anyone to ever have to deal with this disease.
There are several tips to help manage Scleroderma if you do have it, like:
- Use a humidifier to help keep your skin soft
- Exercise to improve your circulation
- Avoid hot baths and showers
- Don’t drink alcohol
- Order your drinks without ice
- Steer clear of caffeine
You can learn more tips from the Scleroderma website.
Scleroderma can affect the digestive system and patients find it easier to eat foods that are easily digested. Here’s a recipe from the Scleroderma Foundation that sounds delicious (I think I’m going to try it myself)…